As pediatric patients with Dravet Syndrome survive longer into adulthood due to better management, the Japanese medical community in late 2025 is increasingly focused on the challenges of "transitional care." Moving from a pediatric setting to adult neurology requires a seamless transfer of complex medical histories and a shift in focus toward long-term maintenance and social support. Adult patients often continue to experience seizures, though the frequency of status epilepticus may decrease, while cognitive and motor disabilities remain stable or may slightly decline. The Japan Dravet Syndrome Sector notes that specialized adult epilepsy centers are being established to provide the continued multidisciplinary care these individuals require. This includes supporting families with guardianship issues and ensuring that adult patients have access to community-based living arrangements and vocational programs that respect their unique health needs and safety requirements.

Frequently Asked Questions

Q. Do seizures stop when a child with Dravet Syndrome becomes an adult? A. No, seizures typically continue into adulthood, although the type of seizure and their triggers may change over time.

Q. Why is transitioning to adult care difficult? A. Adult neurologists may have less experience with rare pediatric-onset syndromes, making it important to have a formal transition plan in place.